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Mami To Five

Life: The good, the bad and the ugly bits!

The Toddler’s Coeliac Disease Test Results

February 5, 2016

Last year I wrote about O’s tummy troubles and him being put on a dairy, soy and wheat/gluten free diet. At that time he didn’t have a specific diagnosis as we were waiting for blood test results. Eventually, over five months after having bloods taken we were finally given the results (how ridiculous is it to have to wait that long!?!) and a diagnosis…

Sort of…

Two of the blood tests were for coeliac disease. One, a genetic test, the second an antibody test. The genetic test came back as positive, meaning simply, that he has a genetic predisposition to develop Coeliac disease at some point in his life. 

HOWEVER

Many people are genetically predisposed but may never actually develop coeliac disease in their entire life.

His antibodies test came back negative. Meaning that his body isn’t creating antibodies to fight the gluten in his system. Meaning they can’t diagnose Coeliac disease. 

We were told that he probably has a non-coeliac gluten intolerance alongside the dairy and soya and to keep him off all three for at least a year, when they would then look at slowly introducing each back into his diet one at a time. Obviously by that point he was already not eating gluten so they couldn’t retest but she made it clear that they wouldn’t have anyway.

I left that appointment a bit flumoxed and unsure of what to do next, or what to say when asked why he can’t eat certain foods.

That old saying ‘if it looks like a duck and quacks like a duck….’ kept popping into my head.READ MORE »

22 Comments CATEGORIES // free from, Kids Health, Raising boys TAGGED: celiac disease tests, gluten intolerance, tummy troubles

Sometimes your child being ill is the best option

November 19, 2014

I may get shot down just for that title alone, but bear with me and let me explain before people start thinking I have lost it!

There are occasions when your child having a nasty bug, that is treatable with medicine is actually a good thing, or at least the lesser of two evils so to speak. Here is why I’m hoping my sweet little O is actually poorly!

toddler eating a biscuit

eating biscuits is serious business!

Upset, swollen and windy tummies, along with rushing to the toilet have been par for the course since LV started weaning off the breast 7 years ago. We were told by the GP to go away and figure out for ourselves what was giving him issues. We realised quite quickly that his problem was milk. When we went back and told the GP she had a look of, so you know what it is what do you want me to do about it? on her face. That was it, no offer of help or guidance, zilch.

READ MORE »

18 Comments CATEGORIES // Kids Health, Toddler TAGGED: allergies, chronic diarrhoea, coeliac, dairy free, exclusion diets, food sensitivities, gastroenteritis, gluten intolerance

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